News & Events
Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog
Cancer Survivors “Lost In Transition”
Cancer Therapy Advisor –

Here is a brief summation of a research study published by the JCO Oncology of Practice (May 24, 2024) that appeared in the Cancer Therapy Advisor. In short, it describes the decline in follow-up care with primary care providers after five years of completing treatment.

National Standards for Cancer Survivorship Care
National Cancer Institute –

This long-awaited, important document was published just this week. It represents the input of key stakeholders in cancer survivorship and was developed over the course of many months. While the proposed standards are not mandatory, it is, at the very least, a significant attempt to put us on a course of providing optimal care for ALL cancer survivors.

Can We Talk? When to Leave and When to Stay in the Doctor-Patient Relationship
Cancer Culture –

In this insightful and intriguing essay, Dr. Stacey Wentworth looks at how to evaluate the doctor-patient relationship. She offers some key guidelines for helping survivors determine if they are in the right place, with the right person, at the right time.

Dana-Farber Adult Survivorship Program
Dana Farber Cancer Institute – The Adult Survivorship Program team and Lymphoma Division at Dana-Farber Cancer Institute has created an evidence-based Hodgkin Lymphoma online educational resource website for Hodgkin Lymphoma survivors, loved ones, caregivers, and clinicians. We have designed this program to describe the different aspects of survivorship for Hodgkin Lymphoma patients, including cancer risks, care of your heart, healthy living, emotional well-being, family and relationships, and general tips. This website provides specific strategies to manage potential late and long-term effects from chemotherapy and/or radiation for Hodgkin Lymphoma and other related cancers.
Long-Term Breast Cancer Risk in Hodgkin Lymphoma Survivors Treated With Doxorubicin
Medpage Today –

The research was presented in October, 2022 at the International Symposium on Hodgkin Lymphoma and earlier, at the ASCO (American Society for Clinical Oncology) Annual Meeting in 2021. A common chemotherapy drug used to treat Hodgkin lymphoma conferred a significantly increased risk of breast cancer among women treated during adolescence and adulthood, a large retrospective study showed.

VivorCare – The First Virtual Cancer Survivorship Clinic
VivorCare –

VivorCare is the first virtual survivorship clinic for those living with and beyond cancer.

Listen to the “Healthcare After Cancer Podcast”
Stanford Medicine –

Meet Dr. Stephanie Smith, Dr. Lidia Schapira, Elle Billman, and Dr. Natasha Steele – the “dream team” from Stanford Medicine who have created an exciting new resource for cancer survivors. This podcast offers a unique opportunity to hear directly from both survivors and experts in survivorship care on a wide range of subjects. It is informative, engaging, and just what we need to feel less alone in our struggles.

Exercise Is A Proven, Powerful Medicine For Cancer Survivors
Coping Magazine –

Sometimes, moving our bodies is the LAST thing we want to do. Cancer survivorship can be exhausting. Fatigue is one of the most common effects of cancer treatment. And, the more late effects begin to pile up, the more tired we become, and the more likely we are to succumb to the couch. But there are many, many reasons why we shouldn’t.

Even a small amount of exercise can have a significant impact. Just about everyone can benefit from a daily walk.

‘Patient Is Otherwise Healthy’
JCO Oncology Practice –

Being diagnosed with cancer at any age puts many in a tailspin.

When Cancer Centers Snooze, Patients Lose: It is Time to Make Insomnia a Priority for Survivors
JCO Oncology Practice –

Insomnia is one of the most common late effects of cancer treatment, yet it is often overlooked in survivorship care. Fewer than half of NCI-designated cancer centers routinely screen for sleep problems, and many oncologists and nurses rarely ask about it. As a result, fewer than one in five survivors struggling with sleep ever mention it to their care team. Effective treatments for insomnia do exist, but they are not always discussed due to lack of time, knowledge, or resources.