News & Events
Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog
National Standards for Cancer Survivorship Care: Opportunities to Advance Care and Research ASPO Survivorship SIG Webinar
NIH National Cancer Institute –

What should high-quality survivorship care look like? In this presentation, Dr. Michelle Mollica of the National Cancer Institute outlines new national standards that aim to ensure every survivor receives comprehensive, evidence-based support after treatment. From care coordination to managing long-term effects, these guidelines offer a roadmap for improving both patient outcomes and research.

Two Survivors, One Message: Survivorship Is a Lifelong Journey
OncoDaily –

In this powerful advocacy piece, Phuong Ly Gallagher and Erin Cummings, both cancer survivors and dedicated advocates, share their personal stories to raise awareness in the medical community. Their message is clear: cancer survivorship does not end with remission.

Preparing Survivors for the Risk of Secondary Cancers
ONS Voice –

Many long-term Hodgkin lymphoma survivors face an increased risk of developing secondary cancers, often as a result of earlier treatments like chemotherapy or radiation. These risks can emerge years or even decades after treatment, making ongoing awareness and screening a critical part of survivorship care.

‘The pieces are all there’: Cancer survivorship model merges care teams, technology
Healio –

A proposed cancer survivorship model emphasizes interdisciplinary coordination and the use of digital tools to enhance long-term care for survivors. By integrating care teams and technology, this approach aims to address the fragmented nature of post-treatment care and improve patient outcomes.

Beyond the Cancer Diagnosis: Dialogue with Betty Roggenkamp
Oncodaily.com –

Here is a great interview hosted by Adrian Pogacian, speaking with Betty Roggenkamp, in “Beyond the Cancer Diagnosis.” Betty is well known for her work in promoting quality cancer care as well as a leading expert in the area of AYA cancer survivors. Adrian is a clinical psychologist who specializes in the psychological impact of a cancer diagnosis, which is now a subspecialty known as “Pscyho-Oncology.” The interview highlights some of the psychological challenges that survivors face – and not just AYA’s!

Menopausal cancer survivors offered HRT under new guidance
The Times –

Great news for cancer survivors experiencing menopausal symptoms: recent updates in medical guidelines now consider hormone replacement therapy (HRT) as a potential treatment option.

Belonging Beyond Borders: Facing Cancer as a Migrant
Youth Cancer Europe –

This is a thought-provoking short video about the challenges that cancer survivors face when they are diagnosed with cancer in another country. Hear from Carmen, an AYA survivor of Hodgkin’s who is from Costa Rica, and April, who is from the Philippines, as they negotiate cancer care in a world that is not their own.

‘Would he have lived?’ When insurance companies deny cancer care to patients
NBS News –

Insurance companies have been in the hot seat lately, for good reason. Both private insurers and Medicare are experiencing piercing scrutiny for their routine and often mind-boggling refusals to reimburse. Read this article if you have any doubt that the system is broken.

Lack of Insurance Could Mean Later Cancer Diagnoses for Black, Hispanic Americans
Health Day News –

According to this new study, “Being uninsured accounts for a significant proportion of racial and ethnic disparities in cancers that are only detected at a later, more life-threatening stage.” This expansive study, led by the American Cancer Society, used data from roughly 1.9 million patients diagnosed between 2013 and 2019. The findings were published in the Journal of the National Cancer Institute.

Susie Leigh – Founding a Movement, Shaping the Future
National Coalition for Cancer Survivorship –

A Vietnam veteran, an oncology nurse, a four-time cancer survivor, and one of the founding members of the National Coalition for Cancer Survivorship (NCCS), Susie Leigh is not just a cancer survivor; she is a pioneer in the cancer survivorship movement.