The Long-Term Follow-Up (LTFU) Study has resulted in more than 300 publications in scientific journals since it was launched in 1994. Some of these articles are summarized here.

American Cancer Society released their annual report on cancer facts and trends. The report reveals a milestone 70% 5-year survival rate for all cancers combined for those diagnosed between 2015-2021 in the United States, due to cancer research and treatment advancements. The report acknowledges that with increasing survival rates, there must be more emphasis on survivorship challenges.

Stanford onco-primary care physician and author Dr. Ilana Yurkiewicz turns her national keynote into a practical playbook for anyone navigating a complex medical journey. She pulls back the curtain on how fragmented our health care system really is and offers three actionable strategies to take control of your care.

What should high-quality survivorship care look like? In this presentation, Dr. Michelle Mollica of the National Cancer Institute outlines new national standards that aim to ensure every survivor receives comprehensive, evidence-based support after treatment. From care coordination to managing long-term effects, these guidelines offer a roadmap for improving both patient outcomes and research.

This article points to the need for better education for those who suffer from tricuspid valve disease. Tricuspid regurgitation (TR) is not uncommon in long-term Hodgkin’s survivors, yet it is one of the late effects that we rarely hear about. There ARE treatments for TR and several trials in the works. 

In this powerful advocacy piece, Phuong Ly Gallagher and Erin Cummings, both cancer survivors and dedicated advocates, share their personal stories to raise awareness in the medical community. Their message is clear: cancer survivorship does not end with remission.

Here is a fascinating look at cancer survival rates, innovations for treatment, and access to services around the world.

Many long-term Hodgkin lymphoma survivors face an increased risk of developing secondary cancers, often as a result of earlier treatments like chemotherapy or radiation. These risks can emerge years or even decades after treatment, making ongoing awareness and screening a critical part of survivorship care.

Dr. Steven J. Atlas and colleagues propose a bold, integrated survivorship model that uses digital tools to connect the dots—bringing oncologists, primary care physicians, and patients together through shared care plans and real-time communication.

Here is a great interview hosted by Adrian Pogacian, speaking with Betty Roggenkamp, in “Beyond the Cancer Diagnosis.” Betty is well known for her work in promoting quality cancer care as well as a leading expert in the area of AYA cancer survivors. Adrian is a clinical psychologist who specializes in the psychological impact of a cancer diagnosis, which is now a subspecialty known as “Pscyho-Oncology.” The interview highlights some of the psychological challenges that survivors face – and not just AYA’s!