In the U.S., cancer patients must often be their own health care advocates. This has helped create a community of cancer survivors that offers the long-term support Swiss patients lack. A visit with doctors, activists and patients in Chicago and Bern.

This long-awaited, important document was published just this week. It represents the input of key stakeholders in cancer survivorship and was developed over the course of many months. While the proposed standards are not mandatory, it is, at the very least, a significant attempt to put us on a course of providing optimal care for ALL cancer survivors.

There are some startling statistics presented in this research article from the American Cancer Society – most notably, that nearly 50% of cancer survivors who were studied had or expected to face significant financial debt due to their cancer and cancer treatment, while, at the same time, almost ALL of those same survivors had insurance. What is wrong with this picture you ask? Plenty.

In the first episode of The HemOnc Pulse in 2024, the lead researchers of the Hodgkin Lymphoma International Study for Individual Care (HoLISTIC) consortium discuss the immense labor and fortitude it took to successfully launch the consortium, which includes a global team of diverse experts focused on the prognosis, epidemiology, treatment, survivorship, and health outcomes in patients with Hodgkin lymphoma.

Meet Sheilagh Foley, a Hodgkin’s survivor with a familiar tale to tell, and she does it so beautifully. Hodgkin’s International was mentioned as a resource, and we are thrilled to have the “shout out!”

Long-term survivors have been using the internet to understand their Late Effects for years. The value of self-advocacy is highlighted in this article.

​More cancer patients live longer. Few get the help they need to stay healthy. 50-year Hodgkin Lymphoma survivor, Susan Leigh, describes the challenges of long-term cancer survivors.

Hodgkin’s International is grateful for the Movement Condo Team and being chosen to be this year’s GraceWorks recipient.

Hodgkin lymphoma is a form of cancer that starts in white blood cells is often curable. But, poor black and Hispanic young people are less likely to survive the disease than their white peers, a new study shows.