Voices of Hodgkin’s Blog

Personal stories, insights, and well-earned advice from your fellow survivors.

Sort the blog items below by category.

Understanding and addressing medical gaslighting: a call for compassion in healthcare
Have you ever felt dismissed or belittled by a healthcare provider? You describe your symptoms, but the response is indifferent, dismissive, or skeptical, leaving you questioning your own experiences.
The value of standing still
The Value of Standing Still- by Maria Sarath Ragucci
A book review and personal thoughts from a fellow Hodgkin's survivor, Maria Sarath Ragucci.
A day in the life of a long-term survivor: a journey of gratitude and perseverance
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
On complementary therapies
KARLA GUERERRI
Whenever I meet another long-term Hodgkin lymphoma survivor, sooner or later the conversation turns to therapies we have tried in order to improve various conditions plaguing us as a result of late effects.
The myth of survivorship
Jerry Cornacchio
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
4 steps to staying informed without getting anxious
Hodgkin’s International–and our online Facebook support groups–has a wealth of  information about late effects from treatment for Hodgkin lymphoma. However, managing your anxiety, while learning about late effects can be a challenge.
Epic experience in the Colorado Rockies
I had the chance to attend Epic Experience, a life-changing adventure camp for adult cancer survivors, held in the Colorado Rockies, in July 2021. I had applied two years prior, and after submitting an application, medical records, and clearance from my doctor, I received confirmation that I would be attending in July 2020.
Thyroid problems – Did my treatment for Hodgkin’s cause this? Does it matter?
SANDRA (SANDI) M. LIBERATORI, ESQ.
Five or six years after I was treated with radiation for Hodgkin lymphoma, my husband and I decided to start a family. When I didn’t get pregnant right away, I started to work with my gynecologist to find out if there was a problem.
Five best “perks” of being a long-term Hodgkin’s survivor
ERIN GEDDIS CUMMINGS
Being a Hodgkin Lymphoma survivor may come with its share of challenges, but there are some unexpected benefits that come with it as well.
Surviving Hodgkin’s, surviving Covid 19
Lori contracted the Covid 19 virus (CV19) in 2021. Her initial symptoms included a low-grade fever and some chest tightness with breathing. She was transported and admitted to the hospital after calling 911 on day three of symptoms.