Whenever I meet another long-term Hodgkin lymphoma survivor, sooner or later the conversation turns to therapies we have tried in order to improve various conditions plaguing us as a result of late effects.
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
Hodgkin’s International–and our online Facebook support groups–has a wealth of information about late effects from treatment for Hodgkin lymphoma. However, managing your anxiety, while learning about late effects can be a challenge.
I had the chance to attend Epic Experience, a life-changing adventure camp for adult cancer survivors, held in the Colorado Rockies, in July 2021. I had applied two years prior, and after submitting an application, medical records, and clearance from my doctor, I received confirmation that I would be attending in July 2020.
Five or six years after I was treated with radiation for Hodgkin lymphoma, my husband and I decided to start a family. When I didn’t get pregnant right away, I started to work with my gynecologist to find out if there was a problem.
Lori contracted the Covid 19 virus (CV19) in 2021. Her initial symptoms included a low-grade fever and some chest tightness with breathing. She was transported and admitted to the hospital after calling 911 on day three of symptoms.
If you’re a Hodgkin's lymphoma survivor, it's likely that you remember every detail of your medical journey. Whether it's the surgeries, chemotherapy, infusions, or hospital stays, these experiences are often ingrained in your memory. However, as time goes on, these memories may become distorted or fade into the background of your everyday life.
Last weekend was to have been the first-ever conference organized by Hodgkin’s International, in Boston Massachusetts, but sadly the coronavirus pandemic necessitated postponement. As one of our main goals is to connect people who have been treated for Hodgkin’s lymphoma (HL), it was arranged that we would have a virtual meeting instead, on the same day.