Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog

Personal stories, insights, and well-earned advice from your fellow survivors.

Sort the blog items below by category.

On complementary therapies
Whenever I meet another long-term Hodgkin lymphoma survivor, sooner or later the conversation turns to therapies we have tried in order to improve various conditions plaguing us as a result of late effects.
The myth of survivorship
Jerry Cornacchio
I titled this article 'The Myth of Survivorship' to highlight the need for active participation in our lives rather than just surviving. I don't see myself as a survivor because it implies a passive role, as though I am a victim of disease and circumstances beyond my control.
4 steps to staying informed without getting anxious
Hodgkin’s International–and our online Facebook support groups–has a wealth of  information about late effects from treatment for Hodgkin lymphoma. However, managing your anxiety, while learning about late effects can be a challenge.
Epic experience in the Colorado Rockies
I had the chance to attend Epic Experience, a life-changing adventure camp for adult cancer survivors, held in the Colorado Rockies, in July 2021. I had applied two years prior, and after submitting an application, medical records, and clearance from my doctor, I received confirmation that I would be attending in July 2020.
Thyroid problems – Did my treatment for Hodgkin’s cause this? Does it matter?
Five or six years after I was treated with radiation for Hodgkin lymphoma, my husband and I decided to start a family. When I didn’t get pregnant right away, I started to work with my gynecologist to find out if there was a problem.
Five best “perks” of being a long-term Hodgkin’s survivor
Being a Hodgkin Lymphoma survivor may come with its share of challenges, but there are some unexpected benefits that come with it as well.
Surviving Hodgkin’s, surviving Covid 19
Lori contracted the Covid 19 virus (CV19) in 2021. Her initial symptoms included a low-grade fever and some chest tightness with breathing. She was transported and admitted to the hospital after calling 911 on day three of symptoms.
The five most important things to do as a long-term survivor of Hodgkin’s lymphoma
If you’re a Hodgkin's lymphoma survivor, it's likely that you remember every detail of your medical journey. Whether it's the surgeries, chemotherapy, infusions, or hospital stays, these experiences are often ingrained in your memory. However, as time goes on, these memories may become distorted or fade into the background of your everyday life.
On finding a new way to eat, and getting a new lease on life
Karla Guererri
More than thirty years after radiation treatment–huge amounts of crudely aimed cobalt radiation to the mantle field–some serious late effects had come at me in full force, one after another.
Long-term Hodgkin’s lymphoma survivors “meet” for the first time on Zoom
Last weekend was to have been the first-ever conference organized by Hodgkin’s International, in Boston Massachusetts, but sadly the coronavirus pandemic necessitated postponement. As one of our main goals is to connect people who have been treated for Hodgkin’s lymphoma (HL), it was arranged that we would have a virtual meeting instead, on the same day.