Hodgkin’s International Symposium on Long-term Survivorship

Join us for Hodgkin’s International Symposium on Long-Term Survivorship: Instilling Hope and Advocating for Change! ​

This is a wonderful and unique opportunity to meet others who have a common bond in being treated years, even decades earlier. Celebrate survivorship and learn about the late effects of treatment from world-renown speakers. Make new friends, connect with those you may have “met” (but maybe not in person), learn how to advocate for yourself in the survivorship world, and explore the wonderful city of Boston!

World-renowned medical experts will present important information about:

  • common and serious late effects that survivors deal with–such as pulmonary and cardiac disease, secondary cancers, and radiation fibrosis;
  • psychosocial issues of being long-term cancer survivors
  • ways in which you can be involved in cancer survivorship advocacy.

Register

Location

Boston Park Plaza Hotel
50 Park Plaza at Arlington Street
Boston, MA 02116 US

Date & Time

Friday, June 7, 2024
6:00-8:00 pm

Saturday, June 8, 2024
7:30 am-4:00 pm symposium
6:00-9:00 pm dinner

Sunday, June 9, 2024
Touring Boston and gathering for good-byes

Schedule of Activities

Friday, June 7, 2024
6:00-8:00 pm: Check in with Hodgkin’s International (Georgian Foyer)
Welcome reception for survivors and their guests (Arlington/Berklee/Clarendon)


Saturday, June 8, 2024
7:30-8:30 am: Check in with Hodgkin’s International for Saturday Symposium (Georgian Foyer)
Continental Breakfast Buffet (Arlington/Berkley)

8:30 am: Morning Program Begins (Georgian)

8:30-8:45 am: Welcome Remarks
Erin Cummings, MSW, LCSW and Tess Nowell, MD, Co-Chairs, Hodgkin’s International

8:45-9:30 am: “The State of Cancer Survivorship (with a focus on the NCI portfolio of Hodgkin lymphoma research)”
Keynote speaker, Dr. Emily Tonorezos, MD, MPH, National Cancer Institute

9:30-9:45 am: Q&A with Dr. Emily Tonorezos

9:45-10:15 am: “Caring for Survivors of Hodgkin Lymphoma: It Really Does Take a Village”
Dr. Larissa Nekhlyudov, MD, MPH, Brigham and Women’s Hospital/Dana-Farber Cancer Institute

10:15-10:30 am: Morning break (Arlington/Berkley)

10:30-11:00 am: Survivorship Perspective (Title of talk TBA)
Erin Cummings

11:00-11:45 am: (Title subject TBA)
Panel #1 featuring Dr. Larissa Nekhlyudov, Erin Cummings, and two cancer survivors, Sophia Smith moderating

11:45 am-12:45 pm: Lunch break (on-site)

12:45 pm: Afternoon Program Begins (Georgian)

12:45-1:30 pm: “Reflections on 30 Years of Providing Care for Hodgkin Survivors”
Keynote speaker, Dr. Kevin Oeffinger, Duke Cancer Institute (DCI) Center for Onco-Primary Care

1:30-1:45 pm: Q&A with Dr. Kevin Oeffinger

1:45-2:15 pm: “Living Well Beyond Cancer – The Role of Comprehensive Cancer Rehabilitation in Restoring Function and Quality of Life to Hodgkin Lymphoma Survivors”
Dr. Michael Stubblefield, ReVital Cancer Rehabilitation at Select Medical

2:15-2:30 pm: Afternoon Break

2:30-3:00 pm: (Title of talk TBA)
Shelley Fuld Nasso, MPP, National Coalition for Cancer Survivorship

3:00-3:45 pm: (Title Subject TBA)
Panel #2 featuring Dr. Michael Stubblefield, Shelley Fuld Nasso, and 2 survivors, Tess Nowell moderating

3:45-4:00 pm: Closing Remarks
Erin Cummings and Tess Nowell

6:00-9:00 pm: Dinner and Hodgkin’s International Honor of Excellence awards

  • The 2024 Hodgkin’s International Honor of Excellence (Survivor/Advocate) awarded to Susan Leigh, BSN, RN-Retired: The Hodgkin’s International Honor of Excellence acknowledges a cancer survivor and/or advocate who has made remarkable contributions and has inspired positive change within the cancer survivor community.
  • The 2024 Hodgkin’s International Honor of Excellence (Provider) awarded to Kevin Oeffinger: This honor celebrates individuals who have demonstrated exceptional dedication to improving the lives of cancer survivors and to advancing the science and practice of survivorship care.

Sunday, June 9, 2023
Explore Boston or make plans with fellow survivors!

Please Note: In choosing our speakers and topics, we have endeavored to address some of the most pressing issues for long-term cancer survivors. They include:

  • addressing the late and long-term effects of earlier treatments (cardiac and pulmonary disease, subsequent cancers, anxiety, depression, radiation fibrosis, and chronic fatigue)
  • advances in patient-focused survivorship care
  • models of survivorship care
  • collaborating with primary care physicians
  • survivorship research
  • advocacy and cancer survivorship

This schedule may change over the next several months, but we will keep you updated at all times.

Hodgkin’s International is honored to have several of the top clinicians and experts in the field of cancer survivorship join us for our conference.

Kevin Oeffinger
Kevin Oeffinger, MD
Keynote speaker
Award-recipient
Emily S. Tonorezos, MD, MPH
Emily S. Tonorezos, MD, MPH
Keynote speaker
Shelley Fuld Nasso
Shelley Fuld Nasso, MPP
Susan Leigh
Susan Leigh, BSN, RN-retired
Award-recipient
Larissa Nekhlyudov
Larissa Nekhlyudov, MD, MPH
Michael Stubblefield
Michael Stubblefield, MD

Hodgkin’s International is pleased to welcome the following panelists and Hodgkin lymphoma survivors. Each one is inspirational, and together they represent the widely diverse and unique experiences of many long-term survivors.

Anastasia Forrest
Anastasia Forrest
Panelist
Stan Barta
Stan Barta
Panelist
Susan Leigh
Susan Leigh
Panelist
Dr. Abdalla Sholi
Dr. Abdalla Sholi
Panelist

Frequently Asked Questions

Q:Is the conference restricted to Hodgkin's survivors only?

No, the conference is not limited to Hodgkin’s survivors. It is open to anyone, and certainly all cancer survivors, regardless of their diagnosis. We also encourage medical professionals, students, cancer advocates, and caretakers to attend, especially those interested in understanding the late and long-term effects of earlier cancer treatments.

Q:Can I bring a guest?

Absolutely! Guests are welcome to attend the full conference, and will also need to register completely in order for us to adequately cover costs.

Q:Can I attend on Saturday only?

Yes. You are welcome to join us for the day on Saturday, the 8th. We will provide a boxed lunch as well as coffee and snacks throughout the day. The registration fee remains the same: $200 per person.

Q:Why are the registration fees non-refundable? Can't you just re-sell my ticket?

Hodgkin’s International is primarily an all-volunteer team operating on a tight budget. Our non-refundable policy ensures we can provide the best experience at the lowest cost, as it helps us make accurate arrangements with our vendors.

However, we recognize life can be unpredictable. While fees are non-refundable, they are transferrable. Should you be unable to attend, you can transfer your registration to another person, donate it to someone who may not be able to afford to attend or apply it as a tax-deductible donation to Hodgkin’s International.

Our goal isn’t profit but to break even while delivering a valuable conference experience. We appreciate your understanding and truly hope you join us. If you have further questions or concerns, please let us know.

Q:Can you recommend places to stay in Boston?

Hodgkin’s International has arranged for a special rate on a block of rooms at the Hilton Boston Park Plaza Hotel, conveniently co-located with the conference. It is centrally located in downtown Boston, just a block from the Public Gardens and close to many tourist attractions. Do book early as these reduced-rate rooms are available on a first-come, first-serve basis.

Q:Do you have recommendations for places to visit while in Boston?

Absolutely! Please see below for a list of places to visit in Boston.

Q:Who can I contact for questions about the conference and gathering?

Hodgkin’s International will be updating information about the weekend on this website as well as on our Facebook Page. For specific questions not addressed here please email us at erincummings@hodgkinsinternational.org and we will do our best to help.

Registration is open!

Our event will create an environment that fosters connection, education, and empowerment by celebrating survivorship, developing a sense of community through the common bond of experience and showing survivors how to become their own effective advocates out in the world.

Register for the symposium

Interested in sponsorship opportunities?

Places to Stay in Boston

Boston Park Plaza
50 Park Plaza at Arlington Street, Boston, MA
Attendees can call (617) 203-7165 and identify themselves as part of the Hodgkin’s International Long-Term Survivorship symposium to book rooms. Alternatively, attendees can click on the booking link below to register. Select “attendee” from the menu when prompted. The dates of the conference and the name of our organization will be listed by default.
Booking link

Places to visit in Boston on June 7-9, 2024

  • Freedom Trail: This 2.5-mile-long path takes you to 16 historically significant sites, including the Massachusetts State House and its infamous gold dome, Paul Revere’s House, the Old North Church, the USS Constitution, and Bunker Hill. Paul Revere’s House and the Old North Church are located in the North End of Boston, home to many well-known Italian restaurants and bakeries. The USS Constitution, also known as “Old Ironsides,” is the oldest commissioned warship afloat. It is located in Charlestown, within a few blocks of the Bunker Hill Memorial.
  • Beacon Hill: One of Boston’s oldest neighborhoods, Beacon Hill is known for its narrow cobblestone streets, brick sidewalks, gas lamps, and elegant federal-style homes. There are numerous small shops, bookstores, and cafes to explore. A “must-see” is the famous “Acorn Street,” one of the most picturesque streets in Massachusetts.
  • Faneuil Hall and Quincy Market: A historic marketplace where you can enjoy live street performances, shop, and taste a variety of foods.
  • New England Aquarium: Located on the waterfront, it offers marine exhibits including a massive four-story ocean tank.
  • Boston Common: America’s oldest public park. It’s a great place to relax, take a stroll, or enjoy one of the many concerts and cultural events held there.
  • Boston Public Garden: Adjacent to Boston Common, it’s home to the famous Swan Boats and features beautiful flora.
  • King’s Chapel and Burying Ground: One of the oldest graveyards in Boston.
  • The Granary Burying Ground: The final resting place for several notable historical figures including Paul Revere, John Hancock, and Samuel Adams.
  • Black Heritage Trail: A 1.6 mile walk through Beacon Hill, highlighting the history of the “North Slope” of Boston as a thriving Black community during the foundation of our nation.
  • New England Holocaust Memorial: Located near Faneuil Hall and Quincy Market on the Freedom Trail, the memorial’s striking glass towers represent six major Nazi death camps.
  • Boston Tea Party Ships & Museum: Offers an interactive experience about the Boston Tea Party event.
  • Rose Kennedy Greenway: A string of parks and gardens that replaced the former elevated freeway. It has fountains, food trucks, art installations, and more.
  • Rowes Wharf: A part of Boston’s waterfront where you can catch a harbor cruise or just enjoy the view.
  • Boston Harborwalk: A scenic walking path along the water, offering views of the city and sea.
  • Fenway Park: Home to the Boston Red Sox, Fenway Park looks very much as it did when it was built in 1912. Deemed “America’s most beloved park,” it is one of the most popular attractions in Boston.
  • Skywalk Observatory: Located in the Prudential Center, this is an indoor observatory. Elevators take you to the top, where you can have panoramic views of Boston without any walking required.
  • Boston Public Library: Located in Copley Square, the library is accessible, and you can take in the architecture and murals with minimal walking.
  • Charles River Esplanade: Just two short blocks from the Public Garden, a pedestrian bridge brings visitors to this beautiful park and walkway that spans both sides of the Charles River and is home to the Hatch Shell, home to the Boston Pops Orchestra and the hub of annual July 4th celebrations.
  • Back Bay: Built on the site of a small saltwater bay and adjacent to the Public Garden, Back Bay encompasses the Commonwealth Avenue Mall, Newbury Street, and several of the most popular tourist sites in Boston.
  • Cambridge: Just across the Charles River from Back Bay, the city of Cambridge is home to Harvard University and the Massachusetts Institute of Technology as well as the lively, eclectic area of Harvard Square.
  • Museums
    • Museum of Fine Arts: Offers wheelchairs at no extra charge and is equipped with elevators.
    • Isabella Steward Gardner Museum: Next to the Museum of Fine Arts, this fantastic private collection of fine art also houses an indoor garden as well as one of the most spectacular music venues in the city.
    • Institute of Contemporary Art: Located on the waterfront, this museum offers modern design with accessibility.

Things to do in Boston that don’t require walking:

  • Duck Tours: These unique vehicles, which are both buses and boats, allow you to see many of Boston’s major landmarks without needing to walk. They drive around the city and then splash into the Charles River for a boat tour.
  • Trolley Tours: Companies like Old Town Trolley offer hop-on-hop-off tours of the city. This allows you to see many attractions from the comfort of the trolley and choose which ones you might want to explore more closely.
  • Boston Harbor Cruises: Enjoy the city from the water. These boats are typically equipped to handle wheelchairs and offer seating so you can relax and enjoy the view.

For additional activities, visit Meet Boston.

This event represents a long-awaited dream for us. After years of feeling isolated and adrift, the prospect of finally embracing one another is not only inspiring but miraculous.

Register

Sponsorship Opportunities