Hodgkin’s International Symposium on Long-term Survivorship
Join us for Hodgkin’s International Symposium on Long-Term Survivorship: Instilling Hope and Advocating for Change!
This is a wonderful and unique opportunity to meet others who have a common bond in being treated years, even decades earlier. Celebrate survivorship and learn about the late effects of treatment from world-renown speakers. Make new friends, connect with those you may have “met” (but maybe not in person), learn how to advocate for yourself in the survivorship world, and explore the wonderful city of Boston!
World-renowned medical experts will present important information about:
common and serious late effects that survivors deal with–such as pulmonary and cardiac disease, secondary cancers, and radiation fibrosis;
psychosocial issues of being long-term cancer survivors
ways in which you can be involved in cancer survivorship advocacy.
2:30 pm-3:15 pm: Panel Q&A with speakers/clinicians and survivors – subjects TBD
3:15-3:25 pm: Closing Remarks – Erin Cummings and Tess Nowell
3:25 pm: Program End Time
6:00-9:00 pm: Dinner
Sunday, June 9, 2023
On your own to explore Boston! We can arrange trolley tours, Duck Boat tours, and any additional tours to points of interest in and around Boston. We will update Sunday’s activities over the next several months. Let us know what you’d like to do!
Please Note: In choosing our speakers and topics, we have endeavored to address some of the most pressing issues for long-term cancer survivors. They include advances in patient-focused survivorship care, models of survivorship care, working with primary care physicians, survivorship research, as well as addressing the late and long-term effects of earlier treatments. Subjects for panel discussions will incorporate specific late effects such as radiation fibrosis, cardiac and pulmonary disease, subsequent cancers, anxiety, and depression. Lastly, we will discuss what it means to be a “cancer advocate,” both as an individual attempting to steer a course through treatment and beyond as well as becoming an advocate for others.
This schedule may change over the course of the next several months, but we will keep you updated at all times.
“I’m coming to the conference to learn as much as I can about late effects, and I’m coming, because I already feel as though I know most everyone and everyone has become very important to me!”
Lynn Boddy, pictured with Kristie Barmes Amator, survivors
“I’ve been looking forward to this for years! It will be wonderful to meet other survivors, finally! I look forward to a fantastic weekend of sharing our stories and learning from each other as well as from experts in the field of survivorship. Counting the days!”
Erin G. Cummings
Erin G. Cummings, survivor
“My sister has been a survivor for over 50 years. It has been devastating to watch her continue to battle, every day, for all these years. I am attending this conference to support her and all her fellow survivors.”
Eileen Dexheimer, family member
“I’m looking forward to meeting in person my worldwide tribe of fellow HL veterans. Your experiences and advice have literally helped keep me alive! I’m so glad we finally can gather to say hello while getting better educated about how to take care of our unique health needs as long-term survivors of Hodgkins Lymphoma treatments.”
Gloria Gene Moore
Gloria Gene Moore, survivor
“Come to Boston for shared experiences, knowledge, and friendship. Go home with one of the most memorable experiences of your survivorship.”
Paul Edelman, survivor
“The gathering is an opportunity for our group to share their cancer and survivorship journeys and the wealth of information we have all learned from first-hand experience.”
Eileen Gould, survivor
Hodgkin’s International is honored to have several of the top clinicians in the field of cancer survivorship join us for our conference.
Dr. Michael D. Stubblefield is the Medical Director for Cancer Rehabilitation at Kessler Institute for Rehabilitation, National Medical Director for Select Medical’s ReVital Cancer Rehabilitation Program and National Medical Director for Complex Medical Rehabilitation for Select Medical’s Inpatient Rehabilitation Hospital Division. He is the former Chief of Cancer Rehabilitation at Memorial Sloan-Kettering Cancer Center. He is a Clinical Professor in the Department of Physical Medicine and Rehabilitation at the Rutgers New Jersey Medical School. He is board certified in Physical Medicine and Rehabilitation (PM&R), Internal Medicine, and Electrodiagnostic Medicine. His primary clinical expertise is in the identification, evaluation, and rehabilitation of neuromuscular, musculoskeletal, pain, and functional disorders resulting from cancer and its treatment, particularly those caused by radiation and neurotoxic chemotherapy.
Dr. Stubblefield is an accomplished researcher who has published extensively, not only in the rehabilitation literature, but in oncology, pain management, palliative care, neurophysiology, and other journals. He has authored numerous review articles and book chapters in the field of cancer rehabilitation and is the editor of Cancer Rehabilitation: Principles and Practice, the only comprehensive textbook in this emerging field now in its second edition. Dr. Stubblefield is a fierce advocate for the development of cancer rehabilitation and survivorship programs and champions their role in restoring function and quality of life to cancer patients.
Dr. Kevin Oeffinger is a family physician, the founding Director of the Duke Cancer Institute (DCI) Center for Onco-Primary Care, the Director of the DCI Cancer Supportive Care and Survivorship Center, and Professor of Medicine with Tenure in the Division of Medical Oncology in the Department of Medicine. The four-fold mission of the Center for Onco-Primary Care are to: (1) deliver evidence-based, patient-centered health care across the cancer continuum by enhancing the interface between cancer specialists and primary care clinicians; (2) conduct innovative research with cutting-edge technology that can be translated to the community setting; (3) train and educate clinicians and researchers to extend this mission; and (4) generate policy leading to practice redesign.
Dr. Oeffinger has served as a clinician caring for Hodgkin lymphoma survivors for over 30 years. He has also led several studies supported by the National Cancer Institute aimed at improving the long-term health of Hodgkin lymphoma survivors.
Dr. Mayer is the Frances Hill Fox Distinguished Professor Emeritus at the University of North Carolina School of Nursing and a faculty fellow at the M. Louise Fitzpatrick College of Nursing at Villanova University. She is an advanced practice oncology nurse who has over 45 years of cancer nursing practice, education, research, and management experience. Her program of research focuses on the issues facing cancer survivors and improving cancer care. As a nurse who worked on the “frontline” with cancer survivors, and as a cancer survivor herself, she brings a unique perspective to her clinical, research, and health policy collaborations with the cancer community.
She is the past president of the Oncology Nursing Society (ONS), was a member of the National Cancer Institute’s National Cancer Advisory Board (a Presidential appointment) and Board of Scientific Advisors, and was elected as a fellow of the American Academy of Nursing. She is active in ONS and ASCO and is a Past Chair of the ASCO Survivorship Committee. She served as the Editor for the ONS’ Clinical Journal of Oncology Nursing (CJON) from 2007-2015 and has published over 200 articles, book chapters, and editorials on cancer-related issues.
Dr. Larissa Nekhlyudov is a Professor of Medicine at Harvard Medical School and is a practicing internist at the Brigham & Women’s Hospital in Boston, Massachusetts. She is Clinical Director, Internal Medicine for Cancer Survivors at the Dana-Farber Cancer Institute where she offers clinical care for long-term survivors of childhood and adult cancers. Dr. Nekhlyudov is particularly interested in improving the care of cancer survivors and the interplay between primary and oncology care. She has been at the forefront of the field of cancer survivorship, nationally and internationally, by leading and participating in the development of survivorship care policies and clinical guidelines, educational programs, and research. Throughout her career, Dr. Nekhlyudov has been committed to educating and empowering cancer survivors and their caregivers.
Shelley Fuld Nasso, MPP, is CEO of the National Coalition for Cancer Survivorship, where she advocates to transform the cancer care system for everyone touched by cancer. NCCS engages in public policy efforts to improve cancer care and empowers cancer survivors and caregivers to be a voice in public policy debates. Prior to joining NCCS in 2013, she led public policy efforts at Susan G. Komen. She is a graduate of Rice University and the Harvard Kennedy School. She advocates in honor of her dear friend, Dr. Brent Whitworth, a beloved physician who died of cancer at the age of 43.
Q:Is the conference restricted to Hodgkin's survivors only?
No, the conference is not limited to Hodgkin’s survivors. It is open to anyone, and certainly all cancer survivors, regardless of their diagnosis. We also encourage medical professionals, students, cancer advocates, and caretakers to attend, especially those interested in understanding the late and long-term effects of earlier cancer treatments.
Q:Can I bring a guest?
Absolutely! Guests are welcome to attend the full conference, and will also need to register completely in order for us to adequately cover costs.
Q:Can I attend on Saturday only?
Yes. You are welcome to join us for the day on Saturday, the 8th. We will provide a boxed lunch as well as coffee and snacks throughout the day. The registration fee remains the same: $200 per person at the early bird registration rate and $250 for anyone who registers after January 19, 2024.
Q:Why are the registration fees non-refundable? Can't you just re-sell my ticket?
Hodgkin’s International is primarily an all-volunteer team operating on a tight budget. Our non-refundable policy ensures we can provide the best experience at the lowest cost, as it helps us make accurate arrangements with our vendors.
However, we recognize life can be unpredictable. While fees are non-refundable, they are transferrable. Should you be unable to attend, you can transfer your registration to another person, donate it to someone who may not be able to afford to attend or apply it as a tax-deductible donation to Hodgkin’s International.
Our goal isn’t profit but to break even while delivering a valuable conference experience. We appreciate your understanding and truly hope you join us. If you have further questions or concerns, please let us know.
Q:Can you recommend places to stay in Boston?
Hodgkin’s International has arranged for a special rate on a block of rooms at the Hilton Boston Park Plaza Hotel, conveniently co-located with the conference. It is centrally located in downtown Boston, just a block from the Public Gardens and close to many tourist attractions. Do book early as these reduced-rate rooms are available on a first-come, first-serve basis.
Q:Do you have recommendations for places to visit while in Boston?
Absolutely! Please see below for a list of places to visit in Boston.
Q:Who can I contact for questions about the conference and gathering?
Hodgkin’s International will be updating information about the weekend on this website as well as on our Facebook Page. For specific questions not addressed here please email us at email@example.com and we will do our best to help.
Registration is open!
Our event will create an environment that fosters connection, education, and empowerment by celebrating survivorship, developing a sense of community through the common bond of experience and showing survivors how to become their own effective advocates out in the world.
Boston Park Plaza
50 Park Plaza at Arlington Street, Boston, MA
Attendees can call (617) 203-7165 and identify themselves as part of the Hodgkin’s International Long-Term Survivorship symposium to book rooms. Alternatively, attendees can click on the booking link below to register. Select “attendee” from the menu when prompted. The dates of the conference and the name of our organization will be listed by default. Booking link
Places to visit in Boston on June 12-14, 2023
Freedom Trail: This 2.5-mile-long path takes you to 16 historically significant sites, including the Massachusetts State House and its infamous gold dome, Paul Revere’s House, the Old North Church, the USS Constitution, and Bunker Hill. Paul Revere’s House and the Old North Church are located in the North End of Boston, home to many well-known Italian restaurants and bakeries. The USS Constitution, also known as “Old Ironsides,” is the oldest commissioned warship afloat. It is located in Charlestown, within a few blocks of the Bunker Hill Memorial.
Beacon Hill: One of Boston’s oldest neighborhoods, Beacon Hill is known for its narrow cobblestone streets, brick sidewalks, gas lamps, and elegant federal-style homes. There are numerous small shops, bookstores, and cafes to explore. A “must-see” is the famous “Acorn Street,” one of the most picturesque streets in Massachusetts.
Rose Kennedy Greenway: A string of parks and gardens that replaced the former elevated freeway. It has fountains, food trucks, art installations, and more.
Rowes Wharf: A part of Boston’s waterfront where you can catch a harbor cruise or just enjoy the view.
Boston Harborwalk: A scenic walking path along the water, offering views of the city and sea.
Fenway Park: Home to the Boston Red Sox, Fenway Park looks very much as it did when it was built in 1912. Deemed “America’s most beloved park,” it is one of the most popular attractions in Boston.
Skywalk Observatory: Located in the Prudential Center, this is an indoor observatory. Elevators take you to the top, where you can have panoramic views of Boston without any walking required.
Boston Public Library: Located in Copley Square, the library is accessible, and you can take in the architecture and murals with minimal walking.
Charles River Esplanade: Just two short blocks from the Public Garden, a pedestrian bridge brings visitors to this beautiful park and walkway that spans both sides of the Charles River and is home to the Hatch Shell, home to the Boston Pops Orchestra and the hub of annual July 4th celebrations.
Back Bay: Built on the site of a small saltwater bay and adjacent to the Public Garden, Back Bay encompasses the Commonwealth Avenue Mall, Newbury Street, and several of the most popular tourist sites in Boston.
Cambridge: Just across the Charles River from Back Bay, the city of Cambridge is home to Harvard University and the Massachusetts Institute of Technology as well as the lively, eclectic area of Harvard Square.
Isabella Steward Gardner Museum: Next to the Museum of Fine Arts, this fantastic private collection of fine art also houses an indoor garden as well as one of the most spectacular music venues in the city.
Things to do in Boston that don’t require walking:
Duck Tours: These unique vehicles, which are both buses and boats, allow you to see many of Boston’s major landmarks without needing to walk. They drive around the city and then splash into the Charles River for a boat tour.
Trolley Tours: Companies like Old Town Trolley offer hop-on-hop-off tours of the city. This allows you to see many attractions from the comfort of the trolley and choose which ones you might want to explore more closely.
Boston Harbor Cruises: Enjoy the city from the water. These boats are typically equipped to handle wheelchairs and offer seating so you can relax and enjoy the view.