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​Supporting Hodgkin Lymphoma Survivors
​Through Connection, Education, and Advocacy

A Little Knowledge Can Save A Life

Here's a message from our founder, Erin Cummings.

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Who We Are

• Hodgkin’s International is a non-profit (501c3) organization dedicated to improving the quality of life for Hodgkin Lymphoma survivors.
• Our goal is to connect survivors with one another and to provide them with essential information about the Late Effects they may face as a result of earlier treatments.
• We also seek to promote education and medical research in the area of survivorship, foster a better understanding of the particular needs of long term survivors, and to advocate for the interests of Hodgkin Lymphoma survivors around the world.

What Are Late Effects?

Late Effects are the long-term side effects resulting from radiation and chemotherapy treatment for Hodgkin Lymphoma.

Long-term survivors of Hodgkin Lymphoma are at risk for serious health issues as a consequence of earlier treatment, particularly older forms of radiation and chemotherapy. Some of these potential risks include:

• Heart Disease
• Subsequent Cancers
• Chronic Obstructive Pulmonary Disease (COPD)/ Lung issues
• Thyroid Disease
• Radiation Fibrosis (RF)
  
• Pelvic Radiation Disease (PRD)
• Debilitating Fatigue
• Compromised Immune System
• Infertility
• Depression

These are just some of the possible Late Effects that survivors may be challenged with years, even decades after treatment. 

LEARN MORE ABOUT LATE EFFECTS

You Are Not Alone!

Like many of you, we have been seeking information that has often been hard to find, even from our health care providers. While the study of cancer survivorship is no longer a new phenomenon, there continues to be a gap between what researchers know and what survivors NEED to know. Many of us are finding that even our own doctors are unaware of the Late Effects of earlier treatments. Far too many Hodgkin Lymphoma survivors have discovered that they are at risk for serious health issues AFTER they began to have symptoms. Worse, they often have to convince their doctors that their symptoms are real.
This website is designed to provide survivors with up-to-date information about cancer survivorship and Late Effects that are particular to the Hodgkin Lymphoma community. We ARE a community. This is a place for guidance AND connection. You will hear from other survivors, read their stories, and know that you are not alone.

Upcoming Events

Survivor Stories

• Lori
  
• Sandi
  
• Tess
  
• Karla
  
• Andre
  
• Gayna
  
• Jane
  

READ more survivor stories

​Survivorship Care Plan

​It is vitally important that long-term Hodgkin Lymphoma survivors are followed closely, even years after they reach remission. Many Late Effects are “silent,” meaning that they may develop gradually, without notice, and then suddenly become problematic.

Survivorship Care Plan Information

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