Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog

Understanding and Addressing Medical Gaslighting: A Call for Compassion in Healthcare

By Rachel Gingold

Have you ever felt dismissed or belittled by a healthcare provider? You describe your symptoms, but the response is indifferent, dismissive, or skeptical, leaving you questioning your own experiences. This is known as medical gaslighting, a troubling phenomenon in healthcare where patients’ concerns are minimized or ignored, potentially leading to misdiagnosis and delayed treatment.

What is Medical Gaslighting?
Medical gaslighting occurs when healthcare professionals downplay or disregard a patient’s symptoms. This can happen in various forms: a doctor might suggest a symptom is “all in your head,” or a genuine health concern might be labeled as overreaction. The term “gaslighting” originates from the play “Gas Light,” where a husband manipulates his wife into questioning her reality. Similarly, medical gaslighting can make patients doubt their own experiences and even their sanity.

Examples and Scenarios
Medical gaslighting often plagues long-term cancer survivors. Remarks like “Be grateful—you were cured!” overlook the complex reality these survivors face. Typically, after five years in remission, they are placed under the care of primary care physicians, who may not be fully aware of the long-term effects that can manifest post-treatment. This can result in unintentional gaslighting. For example, symptoms such as chronic pain, persistent fatigue, or cognitive issues in patients post-chemotherapy and radiation are often misattributed to stress. Such oversights can prevent the recognition and treatment of more serious, underlying conditions. Therefore, it’s essential for healthcare providers to have a deep understanding of the long-term side effects and complexities involved in cancer survivorship.

The Impact on Patients
The consequences of medical gaslighting are profound. Patients may experience increased emotional distress, a deep sense of frustration, and a loss of trust in the healthcare system. In severe cases, it can lead to worsening health conditions due to delayed or incorrect treatment. Women, people of color, the elderly, the poor, and individuals with chronic illnesses, are particularly susceptible to medical gaslighting. This vulnerability often stems from societal biases and stereotypes that seep into medical practice.

Patient Advocacy: Empowering Yourself
To combat medical gaslighting, self-advocacy is crucial. Here are some strategies:

  • Maintain copies of your medical records. Hodgkin’s International has a Survivorship Care Plan to record your medical history. Hodgkin’s International also provides updated guidelines for late effect screenings, essential information to share with your primary care doctor.
  • Document your symptoms. Keep track of dates, times, intensity of pain, and any other relevant details. This record can provide a clear picture of what you’re experiencing, especially during medical appointments.
  • Seek a second opinion if your concerns aren’t being addressed. As a patient and healthcare consumer, you have the right to find a practitioner who listens and validates your concerns
  • Bring Support to Appointments. Having a trusted friend or family member accompany you to appointments can be beneficial. They can help remember what the provider says, assist in asking questions, and offer moral support.
  • Prepare a list of questions before your appointment, with any questions you have about your symptoms or treatment. Writing them down ensures you won’t forget to ask during the consultation. Don’t hesitate to ask for clear explanations – you deserve to fully understand your health and treatment options.

Healthcare Providers’ Role
Healthcare professionals must recognize the importance of listening to and validating patient concerns. Building a culture of respect and empathy in medical settings is vital. Providers should be trained to recognize and avoid biases that lead to gaslighting.

Legal and Ethical Considerations
Medical gaslighting raises serious ethical concerns. It violates the fundamental principle of “do no harm” and can border on medical negligence. Awareness of these legal and ethical implications is essential for both healthcare providers and patients.

Resources and Support
If you suspect you’ve been a victim of medical gaslighting, especially as a Hodgkin Lymphoma survivor, remember that you are not alone in this struggle. Hodgkin’s International is an invaluable resource filled with information specifically tailored to help combat medical gaslighting in the context of your unique experiences. This organization, along with other patient advocacy groups, provides a wealth of support and knowledge. Additionally, seeking guidance from mental health professionals and participating in online forums can offer a space to share your experiences and connect with a community that understands and supports your journey.

Conclusion: A Call to Action
Medical gaslighting is an issue that needs urgent attention. It’s a call for a systemic change in how we approach healthcare interactions. Sharing your experiences, educating others, and advocating for compassionate care can make a difference. Let’s work together to ensure that every patient is heard, respected, and treated with the dignity they deserve.