The Long-Term Follow-Up (LTFU) Study has resulted in more than 300 publications in scientific journals since it was launched in 1994. Some of these articles are summarized here.

In a recent Cancer Culture article, radiation oncologist Dr. Stacy Wentworth challenges the idea of ranking cancers as “good” or “bad.” She argues that while diagnoses and treatments differ, survivorship challenges are often shared, and far too many people are left without guidance once treatment ends. The real issue is not which cancer is worse, but how many survivors are navigating life after cancer without the information, monitoring, and support they need. This is exactly why Hodgkin’s International exists: to make sure no one is left to figure out life after cancer alone.

Melissa Grosboll of The Many Faces of Cancer Podcast interviews Erin Cummings, co-founder and executive director of Hodgkin’s International. 

Sheri Prentiss, MD, MPH, CPS/A, CPE, FACPE is both a clinician and a cancer survivor. She was diagnosed with breast cancer and has been living with one of the most difficult repercussions from her treatment – lymphedema. Dr. Prentiss poignantly describes her ongoing battle with this late effect.

A new article from Medscape examines how many cancer survivors face health challenges similar to “accelerated aging” – including early heart disease, frailty, and other conditions. If you’re a survivor, consider sharing this article with your primary care doctor. It’s a powerful way to help them understand what survivorship really means.

“Scanxiety,” or the fear that accompanies follow-up testing for cancer survivors, is a common and understandable consequence of what we’ve all been through. In this article, nurses at the Memorial Sloan Kettering Cancer Center in NYC offer some of their “tried and true” methods for coping with this. While the focus in this article is largely on breast cancer, the phenomenon of scanxiety does not belong to a single cancer diagnosis. It affects us all.

Hodgkin International’s Rachel Gingold reflects on 36 years of survivorship.

Young adulthood is full of challenges, but when a cancer diagnosis enters the picture, things get really intense, really fast. Fresh out of undergrad at 24, my life changed overnight when the symptoms I’d been having for nearly a year turned out to be Hodgkin lymphoma – cancer.

Kim Hoffman and Josh Woda, both Hodgkin lymphoma survivors who were each diagnosed in college, reconnected years later after relapsing and eventually fell in love. Their journey is a beautiful reminder that shared experiences can forge powerful bonds and healing hope. A truly uplifting story for anyone in the Hodgkin’s community looking for connection and inspiration.