News & Events
Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog
Susie Leigh – Founding a Movement, Shaping the Future
National Coalition for Cancer Survivorship –

A Vietnam veteran, an oncology nurse, a four-time cancer survivor, and one of the founding members of the National Coalition for Cancer Survivorship (NCCS), Susie Leigh is not just a cancer survivor; she is a pioneer in the cancer survivorship movement.

Medical Gaslighting Is Real- Here’s How To Recognize It And Respond
Self –

This is a great piece on a subject that many of us know all too well – “medical gaslighting.” As the author states, it is “a term used to describe instances in which health care providers ignore or dismiss symptoms and discount patient experiences based on their own implicit bias or stereotypes.” Whether due to a lack of education on a certain subject, such as the late effects of cancer treatment, or an unwillingness to fully hear and understand a survivor’s symptoms,

Evidence-Based Nutrition Guidance to Drive Better Patient Outcomes
Oncology Times –

This article dispels many myths that we have heard over the years. The author presents fact-based and anecdotal evidence that what we eat matters!

Patients First: Samantha & Samuel Siegel’s Marriage of Medicine and Advocacy
National Coalition for Cancer Survivorship –

I “met” Samantha Siegel, fellow Hodgkin’s survivor via Zoom last year and knew immediately that she was a true kindred spirit. “Sam” is a fierce advocate for cancer survivors. She brings both a personal and a professional perspective to the world of advocacy, with the added “plus” that her husband, Samuel, is also a survivor and a physician. I was lucky to meet both Samuel and Samantha in person in late June at the National Coalition For Cancer Survivorship’s CPAT meeting where they shared their amazing story.

Follow The Heart
Cancer Today –

Oncologists and researchers increasingly focus on how to predict, treat and monitor for cardiovascular problems that develop before and after treatment.

In The US, Cancer Survivors Form A Vocal Community. In Switzerland, Some Patients Want To Change A Culture of Silence.
NZZ (New Journal of Zurich) –

In the U.S., cancer patients must often be their own health care advocates. This has helped create a community of cancer survivors that offers the long-term support Swiss patients lack. A visit with doctors, activists and patients in Chicago and Bern.

Even in remission, childhood cancer is rarely ‘done.’ A survivor’s building community around ‘long effects.’
GBH –

This week’s Joy Beat honoree is proof that even in the darkest of times, when life throws you its biggest challenges, there are people who can turn moments of adversity into joy. Erin Cummings joined GBH’s All Things Considered host Arun Rath to discuss her organization and how it has helped cancer survivors find community.

Survivorship: A Personal Story
Bag It Cancer –

In honor of National Cancer Survivors Day on Sunday, June 2nd, Bag It’s own Mikey Shock has shared her personal journey of coming to terms with being a cancer survivor.

Glendale Woman Beats Hodgkin’s Lymphoma, Breast Cancer Twice
12News (KPNX-TV, NBC) –

12News (KPNX-TV, NBC) features survivor, Dorothy Lynn Boddy and Hodgkin’s International.

This Mass. woman beat cancer as a teen. Her fight was just beginning.
Mass Live –

Roughly 50 years have passed since Erin Cummings beat cancer as a high school student.