By Sophia Smith, PhD, Chair of Hodgkin’s International

During my sabbatical at the Netherlands Cancer Institute (NKI), I have been working closely with investigators affiliated with the BETER program, one of the world’s most comprehensive survivorship initiatives for people treated for Hodgkin lymphoma (HL). BETER (short for Better care after HL) was established to systematically identify, prevent, and manage the long-term and late adverse effects of HL treatment using a risk-based, personalized follow-up approach. Embedded within BETER is the INSIGHT study,

The Long-Term Follow-Up (LTFU) Study has resulted in more than 300 publications in scientific journals since it was launched in 1994. Some of these articles are summarized here.

Melissa Grosboll of The Many Faces of Cancer Podcast interviews Erin Cummings, co-founder and executive director of Hodgkin’s International. 

Hodgkin International’s Rachel Gingold reflects on 36 years of survivorship.

Young adulthood is full of challenges, but when a cancer diagnosis enters the picture, things get really intense, really fast. Fresh out of undergrad at 24, my life changed overnight when the symptoms I’d been having for nearly a year turned out to be Hodgkin lymphoma – cancer.

The work of Hodgkin’s International was prominently mentioned, as was our symposium in Boston on the late effects of cancer treatment.

The National Coalition for Cancer Survivorship (NCCS) is proud to announce Susan Leigh, BSN, RN-retired, as a recipient of the 2025 Ellen L. Stovall Award for Innovation in Patient-Centered Cancer Care.

Erin Cummings, Founder and Executive Director of Hodgkin’s International, was featured in a recent post for OncoDaily.com. The piece was written for Linkedin and picked up by OncoDaily. Erin takes the opportunity to recognize and appreciate ALL the fellow Hodgkin’s survivors she has had the privilege to meet over the years.

Sheilagh Foley travelled to Boston to the Hodgkins International Symposium to learn more about how other patients recover from this ‘good’ cancer’, and finds solace and support from doctors and other patients dealing with the disease.

This week’s Joy Beat honoree is proof that even in the darkest of times, when life throws you its biggest challenges, there are people who can turn moments of adversity into joy. Erin Cummings joined GBH’s All Things Considered host Arun Rath to discuss her organization and how it has helped cancer survivors find community.