A major new study from the Childhood Cancer Survivor Study shows that AYA (Adolescent and Young Adult) cancer survivors continue to face excess health risks well into their 50s and beyond. Even decades after treatment, conditions like heart disease, frailty, and other chronic illnesses remain more common among survivors than in the general population. This is especially important for Hodgkin lymphoma survivors who were treated as teens or young adults and may not have regular follow-up care today.
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News stories
SAVR vs. TAVR Re-Operation Rates: What Should Patients Know?
New data from HeartValveSurgery.com reveals important differences in re-operation rates between surgical aortic valve replacement (SAVR) and transcatheter aortic valve replacement (TAVR). The article explains how long each type of valve tends to last, which procedure may require future intervention, and what that means for long-term outcomes. This is a valuable read for anyone considering valve replacement or planning for heart health.
Nineteen Again–A Survivor’s Full-Circle Moment
Jennifer Young, a melanoma survivor, reflects on what it meant to see her daughter reach age 19, the same age she was when she was first diagnosed. She shares how her cancer experience made her more resilient, more empathetic, and more grateful for everyday moments.
Patient Handout
For survivors who have finished treatment and are in remission, the question “Am I cured?” is both natural and complicated. In this thoughtful patient handout, Dr. Wendy Harpham explores how the word “cure” is used in oncology, why some doctors avoid it, and what survivors truly need to focus on after treatment.
Post Traumatic Growth
For many survivors, the cancer experience changes everything. But alongside the fear and grief, it can also bring unexpected growth—stronger relationships, a clearer sense of purpose, and a deeper appreciation for life.
Lifting the Fog of Chemo Brain
Many Hodgkin’s survivors live with “chemo brain”—the frustrating mental cloudiness that can linger for years. Learn what causes it, how to manage symptoms, and what strategies can help improve memory and focus.
National Standards for Cancer Survivorship Care: Opportunities to Advance Care and Research ASPO Survivorship SIG Webinar
What should high-quality survivorship care look like? In this presentation, Dr. Michelle Mollica of the National Cancer Institute outlines new national standards that aim to ensure every survivor receives comprehensive, evidence-based support after treatment. From care coordination to managing long-term effects, these guidelines offer a roadmap for improving both patient outcomes and research.
People With Tricuspid Valve Disease Want More Information, Sooner
This article points to the need for better education for those who suffer from tricuspid valve disease. Tricuspid regurgitation (TR) is not uncommon in long-term Hodgkin’s survivors, yet it is one of the late effects that we rarely hear about. There ARE treatments for TR and several trials in the works.
Two Survivors, One Message: Survivorship Is a Lifelong Journey
In this powerful advocacy piece, Phuong Ly Gallagher and Erin Cummings, both cancer survivors and dedicated advocates, share their personal stories to raise awareness in the medical community. Their message is clear: cancer survivorship does not end with remission.
Risks for Secondary Malignancies: Why Ongoing Survivorship Care Matters
Cancer survivors face a 14% higher risk of developing entirely new cancers (secondary malignancies) compared to the general population, and they account for nearly 19% of all cancer diagnoses in the U.S. Oncology Advanced Practice Providers (APPs) highlight that past treatments, especially radiation and certain chemotherapies like alkylating agents, platinum-based drugs, anthracycline topoisomerase II inhibitors, and even targeted therapies, can contribute to long-term risk.