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Voices of Hodgkin’s Blog
Voices of Hodgkin’s Blog

Only a Word?

This is a wonderful, short essay by a woman whose survivor experience has made her think twice about how she perceives herself.

National Standards for Cancer Survivorship Care

This long-awaited, important document was published just this week. It represents the input of key stakeholders in cancer survivorship and was developed over the course of many months. While the proposed standards are not mandatory, it is, at the very least, a significant attempt to put us on a course of providing optimal care for ALL cancer survivors.

Survivor Views: Majority of Cancer Patients & Survivors Have or Expect to Have Medical Debt

There are some startling statistics presented in this research article from the American Cancer Society – most notably, that nearly 50% of cancer survivors who were studied had or expected to face significant financial debt due to their cancer and cancer treatment, while, at the same time, almost ALL of those same survivors had insurance. What is wrong with this picture you ask? Plenty.

Four Steps You Can Take To Manage Your Post-Cancer Fears

Here is a brief article on a subject that we know all too well. It seems to be virtually impossible to escape the “post cancer fear” phenomenon, no matter how well you may be feeling. It may be even more difficult for those of us who continue to experience the late effects of treatments. As the wonderful Roseanne Roseannadanna used to say, “It’s always something!” Owning those fears, as it turns out, could be part of turning the corner.

Two Marathon Runners And Hodgkin’s Lymphoma Survivors – Giving Back And Doing Incredible Things

By Matt Ellis and Regina Norfolk – January 2024 marked 25 years that Elena Togashi has been in remission from Hodgkin lymphoma. To mark this incredible milestone, the 45-year-old cancer survivor will run this year’s Boston Marathon with the Dana-Farber Marathon Challenge team.
Continue reading “Two Marathon Runners And Hodgkin’s Lymphoma Survivors – Giving Back And Doing Incredible Things”

You Aren’t Alone: Navigating the Financial Impact of Cancer

The Leukemia and Lymphoma Society offers numerous programs and webinars via their website and “The Bloodline With LLS.” This webinar is a great example of how LLS continues to support survivors of all ages. Monica Bryant, cancer rights attorney and founder of “Triage Cancer” provides spot-on advice as well as several resources on the subject of financial toxicity.

Childhood Cancer Survivors At Greater Risk For Death After Major Cardiovascular Event

This article describes research done by the Childhood Cancer Survivor Study of St. Jude Children’s Research Hospital and CARDIA, which stands for “Coronary Artery Risk Development in Young Adults.” These two organizations combined their data bases to create an in-depth study of the specific risks for childhood cancer survivors. The results are concerning, and they underline the need for early and frequent observation post treatment.