Survivorship Care Plan
Developed by Tess Nowell, MD
This care plan is based on the available evidence on how to best manage the long-term effects and risks associated with Hodgkin lymphoma and subsequent treatment. The sensible recommendations in this care plan are designed to help you have productive conversations with your physicians and other health care professionals. Because Hodgkin lymphoma is relatively rare, many clinicians may not be aware of the relevant health concerns. Our goal is to update this care plan as research is completed and evidence is available.
We suggest that you print out the document, add your details and share the plan with your physicians. It is intended to:
• Inform both you and them of the best information we have about the care you should receive over the course of your life;
• Encourage productive conversations; and
• Enlighten clinical staff who may not be informed as to why you need to have this plan in place.
This care plan is intended to improve your quality of life by providing the groundwork for you to receive long-term follow-up care and relief of late effects.
Cancer survivors: Late effects of cancer treatment - Mayo Clinic (2021)
Cancer Treatment & Survivorship Facts & Figures 2019-2021 (2021)
Approach to the adult survivor of classic Hodgkin lymphoma – UpToDate (2021)
Long Term Follow-Up Care for Hodgkin’s Lymphoma (2021)
Cardio-Oncology Clinic – Overview – Mayo Clinic (2021)
Building Onco-Primary Care to Close the Black Hole in Cancer Survivorship Care - The ASCO Post (2020)
Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out | SpringerLink (2019)
After Treatment - Living as a Childhood Hodgkin Lymphoma Cancer Survivor - ACCO (2018)
Cancer Survivorship Care: Person Centered Care in a Multidisciplinary Shared Care Model (2018)
Building a Multidisciplinary Model of Care for Cancer Survivors – The ASCO Post (2017)
Summing it up: An integrative review of studies of cancer survivorship care plans (2006-2013) – Mayer – 2014 – Cancer – Wiley Online Library (2014)
Care of the Adult Hodgkin Lymphoma Survivor (2012)
Survivorship Programs and Care Plans in Practice: Variations on a Theme (2011)
Follow-up of survivors of Hodgkin lymphoma ACSC_follow_up_of_hodgkin_lymphoma_professional_fact_sheet.pdf (2011)