Survivorship Care Plan by Dr. Tess Nowell
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The evidence is quite sparse for how best to manage long term effects and risks associated with a diagnosis of Hodgkin Lymphoma and subsequent treatment. Therefore, the strategy has been to develop sensible recommendations. These are designed to help you have conversations with your doctors and health care professionals about planning your care. As Hodgkin Lymphoma is quite rare, many of these people may not know much about the relevant issues.
In putting this together, I have taken account of existing guidelines from the USA, UK and Europe and have been fortunate to have advice from the Oncology Department in Oxford (UK), where I live and work (and receive my medical care). There is a lot of work ongoing in the UK and internationally to try to standardize follow up for survivors of cancer, based on evidence that is gradually emerging over the decades. This care plan may therefore need to be updated from time to time. This document is for you to download, add your details, and then share with your doctors. It is to inform both you and them of the best information that we have about caring for you into the future, to enable those conversations, and to give some weight to them such that even the less well-informed healthcare worker may be able to see why you need this plan in place. I truly hope that it will succeed helping to improve the quality of life for many people, by improving long-term follow-up care and relief of late effects, in line with our organization’s objectives. Tess Nowell, MD January 2021 |
Dr. Tess Nowell
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SURVIVORSHIP PLANS
Cancer survivors: Late effects of cancer treatment - Mayo Clinic (2021)
Cancer Treatment & Survivorship Facts & Figures 2019-2021 (2021)
Approach to the adult survivor of classic Hodgkin lymphoma – UpToDate (2021)
Long Term Follow-Up Care for Hodgkin’s Lymphoma (2021)
Cardio-Oncology Clinic – Overview – Mayo Clinic (2021)
Building Onco-Primary Care to Close the Black Hole in Cancer Survivorship Care - The ASCO Post (2020)
Cancer survivors who fully participate in the PROFILES registry have better health-related quality of life than those who drop out | SpringerLink (2019)
After Treatment - Living as a Childhood Hodgkin Lymphoma Cancer Survivor - ACCO (2018)
Cancer Survivorship Care: Person Centered Care in a Multidisciplinary Shared Care Model (2018)
Building a Multidisciplinary Model of Care for Cancer Survivors – The ASCO Post (2017)
Summing it up: An integrative review of studies of cancer survivorship care plans (2006-2013) – Mayer – 2014 – Cancer – Wiley Online Library (2014)
Care of the Adult Hodgkin Lymphoma Survivor (2012)
Survivorship Programs and Care Plans in Practice: Variations on a Theme (2011)
Follow-up of survivors of Hodgkin lymphoma ACSC_follow_up_of_hodgkin_lymphoma_professional_fact_sheet.pdf (2011)
