Articles & Papers
​on Late Effects

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Articles and Papers on Late Effects

Do you have questions regarding a particular issue?  Are you looking for the latest information about Late Effects?

The following sections have links to papers and articles about many of the issues we face as Hodgkin Lymphoma survivors.  These are great to print out and give to your medical providers, and may help you advocate for better care.
General Articles on Late Effects
Coping – Late Side Effects – National Cancer Institute (2021)

Overview of the approach to the adult survivor of classical Hodgkin lymphoma – UpToDate (2021)

Overview of cancer survivorship care for primary care and oncology providers - UpToDate (2021)

Mind jumble: Understanding chemo brain (2020)

Late effects of Hodgkin lymphoma treatment: We can still do better (2020)

Creating a bridge for transition: From pediatric cancer survival to life‐long, risk‐based health care of the adult cancer survivor (2020)

Late mortality and chronic health conditions in long-term survivors of early-adolescent and young adult cancers: a retrospective cohort analysis from the Childhood Cancer Survivor Study (2020)

Long term side effects of radiotherapy | Hodgkin lymphoma | Cancer Research UK (2020)

Results of the Long-Term Follow-Up Study (1994-Present)

Lymphoma – Hodgkin: Late Effects of Treatment | Cancer.Net (2020)

More cancer survivors, fewer cancer specialists point to challenge in meeting care needs (2019)

Long-Term Side Effects of Cancer Treatment | Cancer.Net (2019)

Cancer Survivorship Care: Person Centered Care in a Multidisciplinary Shared Care Model (2018)

Late Effects Burden Lymphoma Survivors After Multimodality Treatment (2018)

Hodgkin Lymphoma: Minimizing Late Effects, Long-term Risks | Children’s Hospital of Philadelphia (2018)

Lymphoma Survivors Report Burdensome Late Effects & Follow-Up Care After Multimodality Treatment – MDalert.com (2018)

A survey to determine usual care after cancer treatment within the United Kingdom national health service (2017)

Late sequelae in Hodgkin lymphoma survivors (2017)

Long-term effects and psychological adjustment: study protocol of a large register-based study on quality of life among survivors of hematological malignancies (2017)

Radiation’s Role in Hodgkin Lymphoma Challenged in Wake of Cancer Recurrence, Toxicity | Lymphoma News Today (2016)

Thousands of cancer sufferers surviving decades after diagnosis | Society | The Guardian (2016)

Meet the MSK Oncologist on a Quest to Cure Hodgkin Lymphoma with Fewer Long-Term Side Effects | Memorial Sloan Kettering Cancer Center (2016)

Health gap between adult survivors of childhood cancer, siblings widens with age — ScienceDaily (2014)

Pediatric Hodgkin lymphoma: trade-offs between short- and long-term mortality risks (2012)

Long-Term and Late Effects of Treatment in Adults - Fact Sheet (2012)

Morbidity and mortality in long-term survivors of Hodgkin lymphoma: a report from the Childhood Cancer Survivor Study (2011)

Clinical Trials and Observations: Morbidity and mortality in long-term survivors of Hodgkin lymphoma: a report from the Childhood Cancer Survivor Study (2011)

The cancer is over, now what? – Oeffinger – 2011 – Cancer – Wiley Online Library (2011)

Care of the Adult Hodgkin Lymphoma Survivor (2011)

Late Effects From Radiation Therapy: The Hits Just Keep on Coming | JNCI: Journal of the
National Cancer Institute | Oxford Academic (2009)

Conventional Hodgkin’s treatment: long-term mortality (2009)

High incidence of late effects found in Hodgkin’s lymphoma survivors, following recall for breast cancer screening | British Journal of Cancer (2006)
Cardiac Issues
Radiation-induced heart disease: A practical guide to diagnosis and management | Cleveland Clinic Journal of Medicine (2021)

Cancer Therapy–Related Cardiac Dysfunction and Heart Failure (2021)

CCSS | CCSS Cardiovascular Risk Calculator (2021)

Cardio-Oncology Clinic – Overview – Mayo Clinic (2021)

Minimally Invasive Valve Repair Gives Patient Her Life Back | Stanford Health Care (2019)

Prevention, Diagnosis, and Management of Radiation-Associated Cardiac Disease: JACC Scientific Expert Panel​ (2019)

Progression of Aortic Stenosis With Radiation – American College of Cardiology (2018)

Cardiovascular Toxicity in Cancer Survivors: Current Guidelines and Future Directions – American College of Cardiology (2018)
​
Increased Risk for CVD in Some Cancer Survivors (2018)

TAVR vs SAVR: Comparing Transcatheter & Surgical Aortic Valve Replacement (2018)

Risk of heart failure in survivors of Hodgkin lymphoma: effects of cardiac exposure to radiation and anthracyclines (2017)

Preexisting Cardiovascular Conditions Nearly Double Heart Failure Risk Among Non-Hodgkin Lymphoma Survivors (2017)

Radiation Associated Cardiac Disease – American College of Cardiology (2017)

Paediatric, Adolescent, and Young Adult Survivors of Hodgkin’s Disease Face an Elevated Risk of Cardiovascular Disease (2017)

Caring for Patients after Transcatheter Aortic Valve Replacement – American Nurse Today (2017)

Worsened Outcomes Due to Prior Chest Radiation Extend to SAVR for Aortic Stenosis (2017)

Long‐Term Outcomes of Patients With Mediastinal Radiation–Associated Severe Aortic Stenosis and Subsequent Surgical Aortic Valve Replacement: A Matched Cohort Study | Journal of the American Heart Association (2017)

Heart Disease Real Risk for Adult Survivors of Hodgkin’s Lymphoma (2016)

Cardiotoxicity and Breast Cancer as Late Effects of Pediatric and Adolescent Hodgkin Lymphoma Treatment (2016)

Cardiovascular Disease After Hodgkin Lymphoma Treatment: 40-Year Disease Risk | Allergy and Clinical Immunology | JAMA Internal Medicine | JAMA Network (2015)

Risk for Valvular Heart Disease After Treatment for Hodgkin Lymphoma | JNCI: Journal of the National Cancer Institute | Oxford Academic (2015)

Radiation dose associated with increased heart disease in Hodgkin lymphoma survivors | 2 Minute Medicine (2015)

Hodgkin’s Lymphoma Survivors Face Higher Long-Term Heart Risks – WebMD (2015)

Drugs prevent heart damage during breast cancer treatment, study shows — ScienceDaily (2015)

Hodgkin’s Lymphoma survivors may have higher cardiovascular disease risk | 2 Minute Medicine (2015)

Aortic Stenosis & Cancer (Hodgkin’s Lymphoma) (2008)

Cardiovascular Status in Long-Term Survivors of Hodgkin's Disease Treated With Chest Radiotherapy (2004)
Subsequent Cancers
Breast Cancer:

Genetic factors influence breast cancer risk after radiotherapy for Hodgkin lymphoma (2019)

Annual Mammography Alone Not Sufficient for Young Hodgkin’s Survivors (2019)

Annual screening may reduce breast cancer deaths by half among childhood cancer survivors (2019)

Childhood Cancer Survivors Fare Worse With Breast Cancer | Medpage Today (2019)

Hodgkin lymphoma survivors at increased risk for breast cancer (2018)

Study finds risk of breast cancer among Hodgkin lymphoma survivors varies by subtype, treatment - National Cancer Institute (2018)

Male Breast Cancer as a Second Primary Cancer: Increased Risk Following Lymphoma (2017)

ASCO Reading Room | Quantifying Breast Cancer Risk in Childhood/AYA Cancer Survivors | Medpage Today (2017)

Breast Cancer After Hodgkin Lymphoma: The Price of Success | Cancer Network (2016)

Breast Cancer Following Radiation for Hodgkin Lymphoma: Clinical Scenarios and Risk-Reducing Strategies | Cancer Network (2016)

Management of breast cancer after Hodgkin’s lymphoma and pediatric cancer – ScienceDirect (2015)

Survivors of childhood Hodgkin lymphoma face high long-term risk of solid cancers (2015)

Breast Cancer After Chest Radiation Therapy for Childhood Cancer | Journal of Clinical Oncology (2014)

Post Hodgkins Lymphoma now diagnosed with Breast cancer | Cancer Survivors Network (2012)

Hodgkin’s Survivors Prone to Breast Cancer Later – ABC News (2009)

Skin Cancers:

Find a free SPOTme® Skin Cancer Screening | American Academy of Dermatology

Skin cancer | American Academy of Dermatology (2021)

Seven important updates for Skin Cancer Awareness Month (2019)

Skin cancer statistics | World Cancer Research Fund (2018)

Long-term risk of secondary skin cancers after radiation therapy for Hodgkin’s lymphoma. – PubMed – NCBI (2013)

CLINICOPATHOLOGICAL EVALUATION OF RADIATION INDUCED BASAL CELL CARCINOMA (2008)

Risk of Basal Cell and Squamous Cell Skin Cancers After Ionizing Radiation Therapy | JNCI: Journal of the National Cancer Institute | Oxford Academic (1996)

Esophageal Cancer:

Radiation-Induced Esophageal Carcinoma 30 Years after Mediastinal Irradiation: Case Report and Review of the Literature (2018)

Gastrointestinal Cancers:

Overall and disease‐specific survival of Hodgkin lymphoma survivors who subsequently developed gastrointestinal cancer (2019)

Colorectal Cancer Screening in Childhood Cancer Survivors | JNCI: Journal of the National Cancer Institute | Oxford Academic (2019)

High prevalence of advanced colorectal neoplasia and serrated polyposis syndrome in Hodgkin lymphoma survivors (2018)

Infradiaphragmatic irradiation and high procarbazine doses increase colorectal cancer risk in Hodgkin lymphoma survivors | British Journal of Cancer (2017)

Long-term survival of gastrointestinal cancer diagnosed in Hodgkin lymphoma survivors. | Journal of Clinical Oncology (2017)

A case series of intestinal adenomatous polyposis of unidentified etiology; a late effect of irradiation? (2016)

General articles about subsequent/secondary cancers in Hodgkin’s survivors:

Risk of Second Cancers After Hodgkin’s Lymphoma Is Similar Across Treatment (2020)

Secondary Cancers in Survivors of Hodgkin Lymphoma (2020)

Survivors of adolescent and young adult lymphoma, leukemia face elevated risk for subsequent cancers (2020)

Child survivors of Hodgkin lymphoma have increased risk of second cancer (2019)

Understanding risks for childhood cancer survivors - UChicago Medicine (2019)

Risk of Second Malignancies in Long Term Hodgkin Lymphoma Survivors of Two Age Cohorts | Blood Journal (2017)

Survivors at risk: Hodgkin lymphoma survivors at high risk of second cancers | International Journal of Hematologic Oncology (2017)

Hodgkin’s Lymphoma Survivors More Likely To Develop Second Cancers; Lung And Breast Cancer Risks Highest (2017)

Second cancer risk following Hodgkin lymphoma (2017)

CE: Cardiotoxicity and Breast Cancer as Late Effects of Ped... : AJN The American Journal of Nursing (2016)

Secondary cancer in a survivor of Hodgkin’s lymphoma: A case report and review of the literature (2014)

Second Cancer Risk Up to 40 Years after Treatment for Hodgkin’s Lymphoma | NEJM (2015)
Pelvic Radiation Disease (PRD)
Pelvic Radiation Disease documents and articles (2021)

Late effects of pelvic radiotherapy – Macmillan Cancer Support (2021)

Symptoms of PRD | Jo’s Cervical Cancer Trust (2020)

Cure or Curse?  A review of long-term side effects from pelvic radiation therapy (2018)
​
Pelvic radiation therapy: Between delight and disaster (2015)

Radiotherapy side effects: Understanding pelvic radiation disease – ONA (2013)
Radiation Fibrosis
Radiation Fibrosis Syndrome in Hodgkin Lymphoma - Dr. Stubblefield Presentation (2021)

Radiation Fibrosis - American Head & Neck Society (2021)​

Radiation Fibrosis Syndrome | OncoLink  (2020)
​
Radiation Fibrosis Syndrome: Functional Impairments in Head and Neck Cancer Survivors - Tactile Medical (2020)

Radiation Fibrosis Syndrome: The Evergreen Menace of Radiation Therapy - Asia Pac J Oncol Nurs (2019)

Thyroid Disease
​Hyperthyroidism – Symptoms and causes – Mayo Clinic (2021)

Thyroid Nodules | American Thyroid Association (2020)

Cancer survivors at increased risk for endocrine diseases (2018) 

Second Cancer Risk Up to 40 Years after Treatment for Hodgkin’s Lymphoma | New England Journal of Medicine  (2015)

Thyroid cancer in survivors of Hodgkin’s lymphoma (2014)

Abnormalities of the Thyroid in Survivors of Hodgkin’s Disease: Data from the Childhood Cancer Survivor Study* |The Journal of Clinical Endocrinology & Metabolism | Oxford Academic (2000)
Immune / Asplenic
CDC – What Cancer Patients, Survivors, and Caregivers Should Know About the Flu (2020)

Cureus | Post-splenectomy Sepsis: A Review of the Literature (2020)

Immunizations for Cancer Survivors | PearlPoint Nutrition Services®  (2020)

Understanding How to Keep Yourself Safe Without a Spleen (2019)

Late Infection-Related Mortality in Asplenic Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study. - PubMed - NCBI (2018)

Recommended vaccinations for asplenic and hyposplenic adult patients (2017)

Long-term risks after splenectomy among 8,149 cancer-free American veterans: a cohort study with up to 27 years follow-up (2014)

Fatigue
Fatigue level changes with time in long-term Hodgkin and non-Hodgkin lymphoma survivors: a joint EORTC-LYSA cross-sectional study | Health and Quality of Life Outcomes | Full Text (2019)

Cancer-Related Fatigue and Muscle Quality in Hodgkin’s Lymphoma Survivors (2018)

Cancer related fatigue: A focus on breast cancer and Hodgkin's disease survivors  (2017)

Cancer-Related Fatigue in Patients With and Survivors of Hodgkin Lymphoma: The Impact on Treatment Outcome and Social Reintegration. – PubMed – NCBI (2016)

Long-term Fatigue Plagues Hodgkin’s Lymphoma Survivors (2016)

Fatigue in Hodgkin Lymphoma Patients: Longitudinal Evaluation and Curve Types up to 5 Years | Blood Journal (2014)

Persisting fatigue in Hodgkin lymphoma survivors: a systematic review. – PubMed – NCBI (2013)
Fertility / Sexual Issues
Sexual quality of life in Hodgkin Lymphoma: a longitudinal analysis by the German Hodgkin Study Group (2013)

Fertility in female survivors of Hodgkin’s lymphoma (2012)

​Keeping Your Ovaries if You Are Having a Hysterectomy | OBGYN.Net (2011)
Disability & Financial Issues for Cancer Survivors

UNITED STATES:
Financial Assistance Resources | People Pledge (2021)


Financial Resources | Cancer.net (2021)

How to Apply for Disability Benefits with Cancer (2021)

Your Employment Rights as a Cancer Survivor – Health Encyclopedia – University of Rochester Medical Center (2021)

Employment Rights (2021)

Childhood Cancer Survivors At Risk for Long-Term Disability | Keefe Disability Law (2021)

Applying for Social Security Disability When You Have Cancer | Keefe Disability Law (2021)

Filing for Disability Due to Cancer | Cancer and Careers (2021)

Social Security Disability Income for People with Cancer (2021)

Finances, employment and secondary breast cancer | Breast Cancer Care (2021)

Social Security Disability and Cancer | DisabilitySecrets (2021)

Qualify for Disability | Disability Eligibility (2021)

The Financial Toxicity of Illness – The New York Times (2019)

Medical financial hardship among cancer survivors in the United States – Zheng – – Cancer – Wiley Online Library (2019)

Qualifying for Disability Benefits with Cancer – Patient Empowerment Network (2018)

Disability insurance and cancer (2018)

How Does The SSA Determine If I’m Disabled? (2018)

Cancer survival is on the rise, but return to work rates are not keeping up (2018)

Social Security Disability Benefits and Cancer (2017)

Patients Unable to Work May Qualify for Disability Benefits (2015)

Sick leave and disability pension in Hodgkin lymphoma survivors by stage, treatment, and follow-up time–a population-based comparative study. – PubMed – NCBI (2015)

Childhood cancer survivors more likely to claim social security support as adults — ScienceDaily (2015)

Patients Unable to Work May Qualify for Disability Benefits (2015)

Billing Challenges for Survivorship Services (2013)

Increased uptake of social security benefits among long-term survivors of cancer in childhood, adolescence and young adulthood: a Norwegian population-based cohort study | British Journal of Cancer (2013)

Work Disability Associated with Cancer Survivorship and Other Chronic Condition (2008)

CANADA:
Work and finances – Canadian Cancer Society (2021)

CPP and Disability benefits – CancerConnection.ca (2017)

Cancer & insurance – Canadian Cancer Survivor Network (2021)

Cancer survivors urgently need funded rehabilitation care (2019)

GENERAL:
Employment status and health related quality of life among Hodgkin-lymphoma survivors’– results based on data from a major treatment center in Hungary (2017)
Mental Health
Stress Management - Cancer Patient Resources (2021)

Managing Anxiety and Distress in Cancer Survivors - National Cancer Institute (2020)

Dealing with Stress and Anxiety as a Cancer Survivor - Cancer Patient Resources (2020)

Long-Term Survivors of Childhood Hodgkin Lymphoma at Increased Risk for Neurocognitive Impairment - Oncology Nurse Advisor (2020)

Patient-reported distress in Hodgkin lymphoma across the survivorship continuum | SpringerLink (2019)

Breathe Through Anxiety - Cancer Patient Resources (2019)

Anxiety and Depression in Cancer Survivors (2018)

Cancer Resilience Takes Time to Grow, So Start Now (2018)

Top 4 Stress Management Techniques - Cancer Patient Resources (2016)

The bond between cancer survivors is strong. That's why it's so hard when we lose each other | Kira Goldenberg | Opinion | The Guardian (2016)

Beyond treatment - Psychosocial and behavioural issues in cancer survivorship research and practice. - Abstract - Europe PMC (2014)
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